How is this even possible in 2024? I realize Rochester isn’t exactly a major metropolis, but we’re in the middle of town! It’s not like they’re relying on Hughesnet or something.
Also, it’s not that they’re cheaping out on us either. The owners live upstairs. This is a duplex.
That all sounds rough, but I’m glad you’ve had some progress! My mom has TN and has really valued going to a regular support group, FWIW.
No support group like that in my town as far as I know. Also, I’m a major TN outlier. Technically it’s ATN- the A standing for atypical. Aside from some unusual symptoms, I’m also much younger than the average person who gets it- I’m in my mid-40s and most people get it when they’re over 70- I’m also male and women get it much more often. Oddly enough, my father also had it, but in his 70s as is more normal. It also just went away for him after a while thankfully. Not for me though.